Comments on Profile Post by luckybaer

  1. RestoredSparda
    RestoredSparda
    Same. I tried to run like usual about 4 months after covid and had intense lung and chest pain. Had to wait over a year before regularly exercising. Obviously everyone is different however. My wife had almost no long term symptoms while I lost all smell and taste for around 6 months.
    Jun 12, 2022
  2. rhythmdevils
    rhythmdevils
    It’s because of the extreme prejudice towards the chronic illness ME/CFS which is what a lot of long covid likely is. A lot of long covid doesn’t ever go away for patients. It’s permanent.
    Jun 12, 2022
  3. rhythmdevils
    rhythmdevils
    ME/CFS is often triggered by a viral infection and the symptoms line up exactly. But there are a group in the medical and government establishment who do not want to believe ME/CFS is a real disease and refuse to treat it as such and fund research into it.
    Jun 12, 2022
  4. rhythmdevils
    rhythmdevils
    Which leaves millions of people like me sick with no cure even though it’s a curable illness. I could go on for pages but it’s an extremely fucked up prejudicial situation to say the least.
    Jun 12, 2022
  5. rhythmdevils
    rhythmdevils
    The best thing you can do if you have long covid symptoms is to REST. Do not push yourself beyond what feels like your lower energy limits. This will give you the best chance of recovering to full health and not developing permanent long covid ie ME/CFS which is a nightmare. Trust me and REST.
    Jun 12, 2022
  6. roshambo123
    roshambo123
    Hopefully long covid reports will spur research into CFS.
    Jun 12, 2022
  7. Thad E Ginathom
    Thad E Ginathom
    For some reason, covid has really been a field day for all the doubters, haters, conspiracy theorists, etc etc. Maybe /people/ always were like this, but now such things get supercharged by the usual social-media-platform suspects.
    Jun 13, 2022
  8. Claritas
    Claritas
    @Thad E Ginathom Let's not kid ourselves here. China lied. The U.S. government lied. Scientific journals lied. The media was clueless, as usual. When the experts lie, it becomes really easy to misinform the uneducated.
    Jun 13, 2022
  9. Thad E Ginathom
    Thad E Ginathom
    Actually, last couple of days, I've felt like I had long covid: getting tired all the time, like I experienced with glandular fever for several weeks. I'm not sure, but don't *think* I had it!

    But anyway, I'm going to do my best to avoid long-covid-argument syndrome now!
    Jun 13, 2022
  10. luckybaer
    luckybaer
    @RestoredSparda Was your wife a fitness person, too? I was a 12-16 miles/week runner, and my wife not very active. She bounced back quickly. I did not!
    Jun 13, 2022
  11. luckybaer
    luckybaer
    @Claritas Or, to lose complete faith in everything!
    Jun 13, 2022
  12. luckybaer
    luckybaer
    My Polar Flow cardio load reports create a great visual of my experience. A doctor gave me prednisone near the end of April, and I've been feeling great. Out of shape, but at least i can go hard.
    Jun 13, 2022
  13. RestoredSparda
    RestoredSparda
    She was actually not into fitness at all. I was in the best shape of my life. Key word "was" lol.
    Jun 13, 2022
    Thad E Ginathom and rhythmdevils like this.
  14. yotacowboy
    yotacowboy
    I heard about this on NPR: https://www.survivorcorps.com/pccc

    Honestly, after reading Whitney's story, it broke my heart. So I'm very, very hopeful that an increased focus on long covid can turn into a legitimatization of ME/CFS with more data and real positive outcomes.
    Jun 13, 2022